Topic:

Data Management

Latest Headlines

Latest Headlines

J&J, IOM provide big boosts to data transparency agenda

The clinical trial data transparency movement was propelled forward by two major developments this week. On the same day, influential national academy the Institute of Medicine called for more systematic sharing of trial results and Johnson & Johnson agreed to extend its transparency initiative to include medical devices and diagnostics.

Novartis picks Qualcomm tech to enable remote collection of trial data

Novartis has added another component to its "Clinical Trials of the Future" program. The latest element of the trial efficiency initiative sees the Swiss Big Pharma team up with computer chip maker Qualcomm to gather data on clinical trial participants between visits to the investigator site.

Flatiron maintains dealmaking pace with patient-reported outcome data hookup

One week after striking a deal with Foundation Medicine, Google Ventures-backed cancer analytics firm Flatiron Health has hooked up with Vector Oncology to advance its clinical research and real-world evidence activities.

Humana agrees to contribute information to PearlDiver's database

Humana has opened up another way for healthcare researchers to access its vault of data. The insurance giant has agreed to add its information to PearlDiver's database, a resource that at the last count contained 1.1 billion HIPAA-compliant patient records.

AMP creates informatics subdivision

Bioinformatics has taken another step toward cementing itself in the life sciences mainstream. The latest validation of the importance of informatics comes from the Association for Molecular Pathology, which has established a subdivision focused on the field.

Venter's HLI inks deal to access registry of 11,000 twins

J. Craig Venter's Human Longevity, Inc. has added another piece to the data tapestry it is creating. The new addition is a registry of 11,000 twins, complete with phenotypic information and paired samples.

Boehringer picks IDBS system in consolidation of ELN

Boehringer Ingelheim has completed a pilot project to assess whether it is best served by its current electronic laboratory notebook technology. The process led to Boehringer deciding to phase out use of multiple in-house systems and replace them with IDBS' E‑WorkBook Suite.

NIH-funded registry of patient-entered genetic data goes live

Geisinger Health System has added another component to the genomic variant database it is helping to create as part of a $25 million National Institutes of Health initiative. The new addition gives patients the option to submit their genetic test results and other health information to a registry.

Researchers join forces to build database of 50M genetic variants

The genetic research community is about to get access to a lot of data. On October 20, two public databases generated by whole-genome and exome sequencing at multiple research institutions will be unveiled.

ONC: Interoperability shortcomings limiting impact of EHRs

The Office of the National Coordinator for Health IT published its annual report on the adoption and use of electronic health records.