The clinical trial data transparency movement was propelled forward by two major developments this week. On the same day, influential national academy the Institute of Medicine called for more systematic sharing of trial results and Johnson & Johnson agreed to extend its transparency initiative to include medical devices and diagnostics.
Novartis has added another component to its "Clinical Trials of the Future" program. The latest element of the trial efficiency initiative sees the Swiss Big Pharma team up with computer chip maker Qualcomm to gather data on clinical trial participants between visits to the investigator site.
One week after striking a deal with Foundation Medicine, Google Ventures-backed cancer analytics firm Flatiron Health has hooked up with Vector Oncology to advance its clinical research and real-world evidence activities.
Humana has opened up another way for healthcare researchers to access its vault of data. The insurance giant has agreed to add its information to PearlDiver's database, a resource that at the last count contained 1.1 billion HIPAA-compliant patient records.
Bioinformatics has taken another step toward cementing itself in the life sciences mainstream. The latest validation of the importance of informatics comes from the Association for Molecular Pathology, which has established a subdivision focused on the field.
J. Craig Venter's Human Longevity, Inc. has added another piece to the data tapestry it is creating. The new addition is a registry of 11,000 twins, complete with phenotypic information and paired samples.
Boehringer Ingelheim has completed a pilot project to assess whether it is best served by its current electronic laboratory notebook technology. The process led to Boehringer deciding to phase out use of multiple in-house systems and replace them with IDBS' E‑WorkBook Suite.
Geisinger Health System has added another component to the genomic variant database it is helping to create as part of a $25 million National Institutes of Health initiative. The new addition gives patients the option to submit their genetic test results and other health information to a registry.
The genetic research community is about to get access to a lot of data. On October 20, two public databases generated by whole-genome and exome sequencing at multiple research institutions will be unveiled.
The Office of the National Coordinator for Health IT published its annual report on the adoption and use of electronic health records.